Thursday, March 20, 2014

and another update

first - to anyone/everyone who has donated to the fundraiser, or shared the fundraiser on their facebook/twitter/social media/email network, i thank you! we've had a decent response so far, and hopefully, it will continue. If you've seen the post (the one before this one), and thought about sharing it, I hope you will.

now for updates.... i had baseline PET scan and brain MRI the end of december.... and while the PET scan showed improvement, the brain MRI showed 2 'tiny' brain mets.... yeah, this is scary stuff! so i had to meet with the radiation oncologist, and a neurologist, and we all agreed that cyberknife was the way to go. now they consider this brain surgery, which is sort of interesting, because there are no scalpels involved... it's targeted radiation. i laid on a table in my street clothes, with this mask over my face (molded to me, and clamped down to keep my head absolutely still). then i listened to the music from my iPod, piped in through the music system, for about 1/2 hour or so. and then was done. we did this 3 times.

i had a new brain mri 4 days ago. thing1 and thing2 (the 2 mets) are gone! this is wonderful wonderful news, capped by the report that says there are no new ones. so my brain is good (well, as good as it ever was)

unfortunately, the alimta was not working as well as we could have hoped.... so again, i look for a new plan

my doctor is trying to get me into one of the PDL-1 inhibitor trials... this really appears to be the cutting edge for treatment for cancer like mine... so i'm hopeful

so i have an appointment with the doctor there on april 2, and we'll be doing a biopsy of the current met on my liver (or possibly the ones that are in my lungs) on april 4, to collect the tissue sample needed.

then we hope i show the PDL markers, so that i'm eligible for the study.

so even if this is all gibberish to you (i had to look it all up), please cross your fingers and hope i show the PDL-1 markers, so that we can do this clinical trial. it's showing amazing results for so many patients just like me........

and i guess that's all. happy spring, everyone!

2 comments:

kath1996 said...

Amy, my fingers, toes, and everything else will be crossed....my most positive thoughts are headed your way. And lots and lots of hugs.

Now you have to keep positive thoughts also. That is very important. A positive outlook means a positive outcome. I know that sounds very cliche' but that's the way I believe.

Hugs and Hugs and Hugs and Hugs.......kath

Lynne Shandley said...

Fingers are crossed that you show the markers so you get into the trial. And yay for cyberknife!